NFWalk

come out to have lots of fun at this wonderful events by supporting people who has Nzf1/2 come out to the NF WALK On October 18 Veterans Park Hoover Al it right next to Spain Park High School,we are looking for me people to help us reach our goal so we can find a cure for this illness

Hey My name is Allison Page I am 25 year old and I am living with NF1 it's has not been easy but I been make thought with having faith .Having these tumor like I have in my back and every where else and having pain all of the time is something i really never thought I be living with and not been able to go to sleep at night when I do go Sleep it  only for a couple hour I know  people might be say sleep is sleep u are right sleep is sleep but sleep with out having to deal with pain in the middle of the night or before u go sleep or when ever because it never stop ,I here people tell me that have the tumor but no  pain I would do anything just have the tumor on me because have pain all of the time is not fun at all .But one thing people always told me i never let that stop me for living life because u can't. Let pain or illness stop u from having from fun in life because if u do u will have a sad ,life and I don't and I don't want to have a sad life but I do want a life .where I can be pain free I know God is our healer I always had faith in God lots people always told me u have such strong faith in God because i never complain about pain because it really doesn't do u in good to complain because God knows what u going thought and he is working on your situation ,I think of it like this everyone who has illness has get line depend if it nf1 or whatever he line illness up because he know how difficult it is for all of us to living with what ever illness  you might have .i am on this Nf trial to see if it made the tumor smaller and it will be a year in sept I really hope it's been help with this tumor and hopefully once I on the medication longer it help with the pain .if it doesn't work I know I going to be heart broken because I been take meds and doing MRI scans and eye exam every three months I take pills for three months then off of it for week in a half then I start the pills back or do the MRI and eye exam and the MRI has come back good in order for me to get the new bottle of pills ,Living with this illness is nothing to play with u have make sure u have faith and peace and hope and love and always have God first and never lose your faith because have this illness make want to give up some time because u feel like u don't have any more hope when u are in so much pain all of the time when u living in pain u have do what u have do and push thought with the pain be sue there nothing u can do.Come out and support people who have this illness on October 18 at veteran park u can run or walk or do a donation does matter just support some one u know who has it ever u don't know the person support it anyway people support cancer or what other illness and I feel like this illness get look over when there some people in this world who deal with this illness on daily basic with pain all of the the time come out and support us and see what we have deal with on  daily basic with pain but we still stay strong !! U know guys I want to tell u guys about my MRI result from the study drug I am taking the tumor is getting smaller so which means I can stay on the study drug praise God I am over the moon happy that I am able to stay in this trial to see what it going to do the next couple months for me on the trial I know God is a miracle worker!!